I HOPE...
I hope you never have to hear the words,
"Your child has cancer."
I hope you never have to hear,
"the prognosis is not good."
I hope you never have to prepare to undergo radiation or chemotherapy,
have a port surgically inserted into their chest,
be connected to IV poles.
Look at you with fear in their eyes and say,
"Don't worry Mom, everything will be okay."
I hope you never have to hold your child as they vomit green bile,
I hope you never have to feed them ice chips for lunch,
I hope you never have to watch the "cure" you pray for slowly take away their identity,
as they,
lose their hair,
become skeletal,
swell up from steroids,
become barely or unable to walk or move,
and look at you with hope in their eyes and say,
"It's going to be okay, Mom."
I hope you never have to stay in the hospital for weeks, months or years at a time,
where there is no privacy, sleeping on a slab, with your face to the wall,
where you cry in muffled silence.
I hope you never have to see a Mother, alone, huddled, in a dark hospital corridor... crying quietly,
after just being told, "there is nothing more we can do."
I hope you never have to use every bit of energy you have left, with all of this going on around you to remain positive, and the feelings of guilt, sorrow, hope and fear, overwhelm you.
I hope you never have to see a child's head bolted to a table as they receive radiation.
I hope you never have to take your child home
(grateful but so afraid)
in a wheelchair because the chemo and radiation has damaged their muscles,
35 pounds lighter,
pale, bald, and scarred.
And they look at you with faith in their eyes and say,
"It's going to be okay, Mom."
I hope you never have to watch a family wandering aimlessly,
minutes after their child's body has been removed.
I hope you never have to face the few friends that have stuck by you and hear them say,
"Thank God, this is over with,"
....because you know it never will be.
Your life becomes a whirl of Doctors, Blood Tests, MRI's, Spinal Taps and Bone Marrow Biopsies. And you try to get your life back to "normal".
While living in mind-numbing fear that any one of these tests could result in hearing the dreaded words...
"The cancer has returned" or "the tumor is growing".
And your friends become even fewer.
I hope you never have to experience any of these things... Because... only then...
Will you understand...
Written by: Carol Baan
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MY POOR BABY-
I KNEW YOU WERE SICK, BUT THE DOCTORS DIDN'T LISTEN,
THEY INSTILLED IN ME SELF DOUBT, BUT IT WAS A MOTHERS INTUITION.
SO I WOULD WAIT TILL I HAD A LIST BEFORE I TOOK YOU TO THE DOCTORS,
BUT THEY DISREGARDED MY FEARS AND MADE ME FEEL LIKE AN OVER WORRIED MOTHER.
I WAS WORRIED...I WAS SCARED THAT I WAS WATCHING YOU DIE!
I KNEW YOU WERE SICK, I COULD SEE IT IN YOUR EYES.
AM I JUST CRAZY? I WOULD THINK, WHEN THE SELF DOUBT KICKS IN.
NO! THERE IS SOMETHING WRONG..WHY WON'T MY DOCTORS LISTEN?
THEN ONE DAY YOU COULD HARDLY STAND, AND I CALLED THE DOCTORS YELLING..
RUN TEST, TAKE BLOOD, HE IS SICK I SAID IN DEMAND, AND I AM NOT LEAVING TILL ITS DONE!
THE TEST CAME BACK WITH NOTHING TO SHOW,
BUT NOW THE DOCTORS KNEW SOMETHING WAS WRONG.
YOU CAN'T STAND UP, YOUR RIGHT SIDE IS WEAK,
AND THAT BEGAN MY LIFE'S WORST WEEK.
A SCAN OF YOUR BRAIN SHOWED A MASS HALF ITS SIZE,
ITS VASCULAR, PROBABLY CANCER..THE DOCTORS WERE SURPRISED.
SO WE CALLED A BETTER HOSPITAL,
AND THEY SENT FOR YOU A.S.A.P..
THEY SAID FOR ANY HOPE OF SURVIVAL, THAT'S WHERE YOU NEEDED TO BE.
THEY SENT A JET, AND OFF WE WENT, I WAS STILL IN DISBELIEF.
MY POOR BABY..I KNEW YOUR HEAD HURT,
WHY WOULDN'T THEY LISTEN TO ME?
THE DOCTORS SPENT A DAY PLANNING WHAT TO DO,
THERE WAS NO TIME, YES, YOU WERE DYING, SO EVERYONE WAS PRAYING FOR YOU.
THE SURGERY IN HOURS WAS NINE AND A HALF, THE TUMOR WAS RESECTED.
BUT THE SWELLING WAS BAD AND YOU ALMOST DIDN'T MAKE IT,
BUT THAT WAS ALL EXPECTED.
YOU SURVIVED THE SURGERY BY A MIRACLE,
AND THE SURGEON PREPARED US FOR THE WORST..
THIS NIGHT WOULD BE A BAD ONE, AND YOU MAY NOT MAKE IT,
THE SWELLING WAS GETTING WORSE.
THE PRESSURES IN YOUR HEAD WERE REALLY HIGH,
MUCH HIGHER THEN THEY EVER SHOULD BE.
THE FEAR I HAVE IS THAT IF YOU DO SURVIVE,
WHAT KIND OF DAMAGE WILL THERE BE?
YOUR BRAIN NEEDS TO REST SO IT CAN HEAL,
THEY HAVE YOU PARALYZED AND SEDATED.
BUT STILL YOU MOVE, AND STILL YOU FEEL,
SO THE NEXT STEP WAS DEBATED.
YOUR BRAIN NEEDS TO BE PUT IN A COMA, THE ONLY WAY TO REST IT.
THEY ALSO COOLED YOUR BODY, ITS NOT PROVEN BUT ITS BEEN TESTED.
WITH YOUR PRESSURES THIS HIGH THEY WILL TRY ANYTHING,
AND THEY HAVE DONE ALL THEY CAN DO.
WITH NOTHING LEFT TO DO MEDICALLY..THE REST IS UP TO YOU.
THE FAMILY PULLED TOGETHER, STRANGERS PUT YOU IN THEIR PRAYERS.
FRIENDS ALL OFFERED HELP...I NEVER KNEW HOW MANY PEOPLE CARED.
PRAYER LIST AROUND THE WORLD..ALL ARE PRAYING FOR YOU,
MY PRETTY LITTLE ANGEL...I AM SO SORRY THIS HAPPENED TO YOU.
Written by Seths Momma...Tina 4/07©
♥
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THE BEAUTY OF YOUR CANCER
THE BEAUTY OF YOUR CANCER IS ~ YOUR SPIRIT SHINING THROUGH IT,
YOUR SMILE AND YOUR LAUGHTER TELL ME YOU WILL MAKE IT THROUGH THIS,
PRAYERS AROUND THE WORLD AND ALL INCLUDE YOUR NAME,
THE BEAUTY OF YOUR CANCER IS~ OUR LIFE WILL NEVER BE THE SAME,
YOU HAVE TOUCHED THE HEARTS OF STRANGERS,
AND NOW THEIRS ARE TOUCHING YOURS,
YOU HAVE TOUCHED THE HEARTS OF FAMILY WHO HAVE SEEN MIRACLES,
AND HOPE FOR CURES,
YOU HAVE TOUCHED THE NURSES AND DOCTORS WHO HAVE WATCHED YOU OVERCOME YOUR OBSTACLES,
THE BEAUTY OF YOUR CANCER IS~ ANYTHING IS POSSIBLE,
THE DAY WE ALMOST LOST YOU,
THE DAY THAT YOU "SURVIVED",
I TOOK A GOOD LOOK BACK,
AND DECIDED TO CHANGE OUR LIVES,
I REALIZED WHAT WAS MISSING, WHAT WAS IMPORTANT, AND WHAT WE NEEDED,
THE BEAUTY OF YOUR CANCER IS~ IT TOOK THE CANCER FOR ME TO SEE IT,
OUR FAMILY BOND IS CLOSER NOW,
THE LOVE WE SHARE IS TRUE,
WE TREASURE EVERY MINUTE,
AND ITS ALL BECAUSE OF YOU,
YOU INSPIRE OTHER FAMILIES WHO ARE GOING THROUGH THE SAME,
YOUR SMILE AND YOUR SPIRIT SEEM TO EASE THEIR PAIN,YOU HAVE CHANGED SO MANY PEOPLE,AND RAISED HOPE IN MANY TOO,
THE BEAUTY OF YOUR CANCER IS YOU.
TINA (SETHS MOMMA)©
♥
Your Spirit Lights My Way
I lay awake in your bed at night,
as if your still beside me.
I play the classical music you liked,
with your blankey and pillows around me.
It soothed us both during hard times,
But now I listen as I weep,
Putting my memory of you to rhymes,
And trying to sooth myself to sleep.
I feel so very lost without you,
I feel so broken inside.
You fought so hard, my brave little hero,
I held you close to me when you died.
I want you back so very much,
I wasn't ready to lose you.
I wasn't done fighting, I never gave up,
But now I am so lost without you.
Your fight for life became my own,
I lost my identity and even my name,
I was "Seths mom" that's how I was known,
And now my whole life has changed.
I gave up my world to fight by your side,
and not a second do I regret.
How strong you were, my hero, my pride,
You brought joy to everyone you met!
I would lay with you in your hospital bed,
and tell you how much I love you,
I would snuggle in and rub your head,
with a pain in my heart for all you were going through.
And at times when it felt unbearable,
and I wondered how I could go on,
I would look at you...and you would smile,
your spirit kept mine strong.
And now as I go on without you,
I look to the heavens and I know,
that your spirit has never left me,
It now lights my way as I go.
I will carry your memory forever,
and I will share your story with new friends,
and I know that one day I will see you again,
because I know death is not the end.
I love you Pumpkin.....
Tina Becker-Seths momma 2008